WHAT WE DO
Spinal Home Help (SHH) assists people with spinal cord injury and their loved ones; from those who have just incurred their injury through to people who are living life out in the community. Our focus is on peer mentoring, holistic support and giving advice or referrals that are based on lived experience of disability.
The hospital and spinal unit provides 24/7 care and the environment is fully wheelchair accessible. Patients can adapt and grow comfortable with that environment, but it is different altogether when they leave the spinal unit to go live out in the community once more. The shock of the two contrasting environments and the need to adapt to so much change so quickly can be a challenge for many we; aim to assist all people with spinal injury and their families to transition from hospital to home as smoothly as possible, with as much support as needed PEER MENTORING & Information and Referral Support.
Our peer mentors will work with patients and their families to provide information and support.
Peer mentors can act as a listening post for patients' concerns and provide encouragement and assistance while maintaining professional standards of patient confidentiality.Peer mentors will share their stories,provide solidarity and encouragement,and also demonstrate the kind of accessible and adaptive technology they use; for example, patients will have a chance to see at least a few types of wheelchairs in action,and get some ideas for what kind of modifications and technology they would like to look into for their own needs.
Peer mentors can suggest a range of adaptive technologies and also talk about home modifications, in order to give patients ideas and choices for their own care. The peer mentors can give patients and their families the knowledge and confidence to live their life after experiencing spinal injury while they are still in the hospital, and to move on from the hospital back out into the community after their recovery.
SPOUSES AND FAMILY
The Spinal Home Help peer mentor and counselling team offers a wealth of lived experience, and an enthusiasm for helping others with SCI, as well as their loved ones. With a qualified counsellor and therapist on board and the mentor team always ready to help, we can assist with a range of issues for people with spinal injury, families and partners.
SPINAL INJURIES CONNECT GROUP - GOLD COAST AND BRISBANE
Spinal Home Help - Gold Coast Connect Group. If you live on the Gold Coast and are struggling to adjust to life after spinal cord injury or just want someone to talk to, support is only around the corner. The connect group will run in the 3rd week of each month. On the Monday, the group will be for people with spinal cord injury only, to create a space that is patient-focused and aimed at sharing experiences dealing with an SCI from a personal perspective. On the Wednesday, the group will provide a welcoming space for spouses, family and friends to discuss their struggles and knowledge of experiencing a spinal cord injury second hand, to ask questions and to spend time with fellow carers. SHH would like to thank Lourens and Julie-Anne very kindly for their generosity in running the networking group and tirelessly working out in the community to support people with spinal cord injury and their families.
Please click -> here <- for our calendar of dates.
For more information, to register your interest in the networking group and to get the address, please contact Julie or Lourens directly (details below).If you require one-to-one counselling, please contact Lourens directly (details below)
Lourens Botha sustained a C5 incomplete spinal cord injury in 2015 after a surgical misadventure. Lourens has a background in psychology and counselling and has an extensive history of family, trauma, abuse and substance abuse counselling. He is committed to helping people with spinal cord injuries to lead meaningful lives and to improve their relationships with spouses, family and friends.
See more about Lourens' journey here.
firstname.lastname@example.org or 0403 137 458
Julie-Anne Botha is the other half of Lourens and has lived experience of being the spouse of someone with a spinal cord injury. Julie has a passion for helping spouses, family member and friends of people with a spinal cord injury to cope with the changes and new demands that they face.
Julie also operates a Facebook support page for spouses of people with SCI: click -> here
Julieemail@example.com or 0430 390 051
PROGRAMS AND WORKSHOPS
Spinal Home Help runs a variety of social, therapeutic and educational programs and workshops throughout the year, catering to a wide range of interests and needs. We convene larger social events year round, such as organising group attendance of community or sporting events like the V8 Supercars or film festivals.
We also run regular, informal social gatherings like movie dates and lunches to keep our clients and our communities connected. Working with allied health and community organisations, SHH provides both long and short term programs based on, but not limited to, hydrotherapy, healthcare, relaxation, art classes and cooking demonstrations. Periodically, SHH volunteers and allied organisations will convene smaller workshops for clients and members of the community, to provide advice and assistance on matters from general lifestyle management to current social or political issues such as the NDIS.
REFERRAL AND INFORMATION SERVICE
Spinal Home Help volunteers work hard to pair clients and their families with the organisations, service providers and services most suited to their needs. By working closely with individuals and families and making sure that clients are involved every step of the way, we can make sure that our advice and information is tailored to fit. SHH networks with many organisations in the social and community services sector to provide our clients with the most accurate and relevant information. From helping you find a service provider or builder to do housing modifications, to pairing you up with an accessible gym or mental health professional, our volunteers will help you every step of the way to find who or what you need.